Biopsychosocial development of adults with Myelomeningocele

Abstract

Myelomeningocele is an intrauterine disease resulting from malformation of the neural tube in the first weeks of pregnancy. There is no cure, but treatments are provided throughout development to avoid irreversible complications. Objective: To show the current quality of life of patients with myelomeningocele and the obstacles along their development. Method: This is a descriptive exploratory research of qualitative nature, with five patients with myelomeningocele over 18 years, through questions open to discussion. Results: The analysis of the collected data was performed with the support of pre-existing literature. The results allowed us to understand the daily impact of this malformation on development and the difficulties overcome over the years. Conclusion: From the collected reports it was possible to understand the limitations developed in the face of secondary diseases, as well as the overcoming and adaptation of myelomeningocele patients throughout their development.

Keywords: Myelomeningocele. Quality of life. Impact profile.